Young People and the NDIS: Issues in Respite and Carer Support

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Young People and the NDIS: Issues in Respite and Carer Support. Maureen Flynn, National Respite 18 September, 2014. Agenda. Who is National Respite? Respite and Carer S upport in 3 service systems NDIS Trial Site Trends and Issues ACT Context ACT Learnings so far… Action.
Young People and the NDIS:Issues in Respite and Carer SupportMaureen Flynn, National Respite18 September, 2014Agenda
  • Who is National Respite?
  • Respite and Carer Support in 3 service systems
  • NDIS Trial Site Trends and Issues
  • ACT Context
  • ACT Learnings so far…
  • Action
  • 1.1 National respiteCommunities of strong relationships that support the lives people chooseSupport interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and informal supports1.2 National Respite
  • Raise the respite voice: NDIA, DSS
  • Member services
  • Research:
  • Mapping respite outputs
  • NDIS transition cost/benefit/impact carers, participants, communities government
  • Volunteer, flexible, family based – cost benefit; social capital
  • Evaluate innovation: flexible, early intervention
  • Business transformation : CMS, online tools
  • National Conference 23-24 October
  • 3.1 Respite and carer support in 3 systemsCare recipientCarerCHSPNDISRespite Care 37Carer support???Family resilience model?5.1 Trial Site LearningsMost families are returning to their current providerMost plans are in the $10 -30 000 rangeMost families aren’t choosing to self manage fundsMajority of people receiving plans have autism or an IDMost providers are registered to provide therapeutic or recreation supportTrial Site Issues
  • Participants and Planning Process
  • Transport and activity cost support/ reasonable and necessary support
  • People with lower support needs & Tier 2
  • Emergency care
  • ACT Context
  • Rolling out over two years
  • Oct 2014: Children born between 2010 and 12, children not expected to start school 2015/16
  • Jan 2015: Years 7-12 transition
  • 1 April: children enrolled Kindi to Yr 6
  • 1 Oct: all remaining children under 15
  • The intention is 5000 people at full roll out, with 200 transitioning a month
  • Currently 30 signed off plans in the ACT
  • ACT and Young People
  • Planning Process
  • Expectations
  • Shift in focus – language and philosophy
  • Education key!
  • Remaining issues: Tier 2, emergency care, non respite carer support eg YC programs
  • 6. Action
  • Participate in our research
  • Spread the word
  • Come to National Conference
  • www.
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